Sankalp Program for Thalassemia Cure

This is a story of a boy who is 14 year old and very smart. He belongs to a very small village of Bihar.

It has been three years since the time Sankalp started the program for thalassemia cure. We started our bone marrow transplantations for patients who had a matched related donor only. Even in this selected group of patient, recent data shows that the team has achieved 95.5% disease free survival and 98.3% overall survival last year, building upon the success of previous years. Specially in the matched sibling context, the team improved disease free survival from 89.1% across the years to 98.3% for last year alone.

Sankalp India Foundation, a Bangalore based voluntary organization started in 2003, achieved a double milestone of having completed 100 Bone Marrow Transplants for children with thalassemia, and have collected 100,000 units of blood through voluntary blood donation drive

This is a story of a family who are extremely poor and who are also categorised as backwards, they are also treated very low in the society which they live.

Sankalp-Cure2Children Network meeting for BMT was organised on 28-29 May 2018 at People Tree Hospitals, Bangalore. The two day meeting held every six months is an opportunity for our transplant teams to get together and brainstorm - contributing to the fine outcomes.

23 May 2018, Mumbai

Sunil and Kavita both were from Madhya Pradesh. Sunil was from a small village called Nimach and Kavita was from Ratlam. As both hailed from the same community, they got married as per tradition. Both of them weren’t very highly educated and had merely completed primary school.

When requested to share her views regarding training sessions conducted over 6 weeks in Bangalore and Indore, Elizabeth Sebastian, the staff nurse from Indore said:

Little Ronak walked in last year on 31 March 2017 into our Sankalp-CIMS Centre for BMT, Ahmedabad.

April 2018 brings to Sankalp the discharge of the 100th patient who received bone marrow transplantation at one of our two centres in Bangalore or Ahmedabad. This is an important milestone in the journey of the organisation towards a thalassemia free India.

Ramesh was earning his bread by working as a private driver in Mumbai. He and his wife Adeshwari, lived in a chawl in Mumbai. Within a year of their marriage, they were blessed with a baby girl who was named Jayshree. Within few months of her birth, it was clear that Jayshree was not growing normally and seemed to have some medical problems.

Sankalp-People Tree Centre for Pediatric BMT is happy to enable Ms Elizabeth Arku from BMT Ghana to receive 20 days of intense training. BMT Ghana is planning to setup what is probably going to be the very first BMT centre in Sub-Saharan Africa later in 2018.