April 2018 brings to Sankalp the discharge of the 100th patient who received bone marrow transplantation at one of our two centres in Bangalore or Ahmedabad. This is an important milestone in the journey of the organisation towards a thalassemia free India.
Sankalp-People Tree Centre for Pediatric BMT is happy to enable Ms Elizabeth Arku from BMT Ghana to receive 20 days of intense training. BMT Ghana is planning to setup what is probably going to be the very first BMT centre in Sub-Saharan Africa later in 2018.
The month of December saw yet another milestone for Team Sankalp. We took two strides forward in our mission to give life a better chance.
Bone marrow transplantation continues to be the only cure from thalassemia.
Delivering equitable healthcare is a global challenge. There are certain groups of patients which continue to perform poorly on clinical indicators compared to other patients. Gender, socio-economic status, distance from treatment centre and parental education are well established factors which influence the treatment outcomes.
Manish and Meena met in a family function, fell in love, got married and their sweet married life started. Manish was a photographer by his profession. Since childhood he was fond of doing photography.
Thanks to the amazing success of the centres part of the Sankalp-Cure2Children network for Pediatric BMT, we are receiving more and more requests from families who have a thalassemic kid looking for the option of cure. While we do guide them on a case by case basis there are some key points which we have observed.
Anil and Manisha, both natives of Mumbai were married and leading their lives in the day to day hustle of the city. Few year later, Pradhnya, a little baby girl entered their lives.
For those patients who have related fully HLA matched donors (apart from siblings), does the relationship with the donor influence the outcome? We observed that there was a significant difference in outcomes between those patients who received bone marrow from a fully matched father and those who received it from their mother.
Mr Chandrakanth Acharya is a voluntary blood donor and a donor motivator who is close to completing 100 donations with 32 single donor platelets donations and 1 stem cell donation.
Sankalp is committed to enabling delivery of better quality in each of the blood donation drives. A critical component in quality assurance is the systematic capturing of the data which could be used to quantify performance. Ever since 2007, when we started our blood donation drive, we evolved several tools which are used to assess the quality of the blood donation camp including feedback for each stakeholder, performance as against targets, noncompliance, complications, deferrals etc.
