Shared learning can bring care closer to children. At Vietnam’s 2nd International Thalassemia Conference, Dr. Mohan Reddy shared transplant experience; Rajat Kumar Agarwal discussed prevention and comprehensive care.
Hue Central Hospital celebrated its first 20 BMTs, with all children doing well. We congratulate Dr. Kim Hoa’s team, supported by Dr. Lawrence Faulkner, Cure2Children and DKMS.
We are grateful to contribute through training and technical support, and remain committed to learning together.
If you ever wondered what your support meant, this day held a 1000 answers.
Last month, we were counting the minutes.
On 5th September, we all came together in Bengaluru to celebrate 1,000 bone marrow transplants with the people who helped make this possible. There were a thousand reasons to be grateful, each with a name, a face and a family.
For years, Waliullah’s family lived from one blood transfusion to the next. Then came a fully matched donor and a possible way out of thalassemia.
The news should have brought relief. Instead, it brought fear.
The youngest of 6, Waliullah was diagnosed when his parents were already around 50. Having struggled to accept regular transfusions, a bone marrow transplant felt overwhelming. “We had many doubts and fears. As parents, making this decision for our child was extremely difficult.”
“When Rashiddhya, was diagnosed with thalassemia major at three-and-a-half months, we were terrified. We thought everything was over,” recalls her mother from Akola.
During pregnancy, she had undergone every test advised, yet no one explained that thalassemia could be a possibility or that screening could reveal the risk. Looking back, she speaks with painful honesty:
For many families, the road to BMT begins with long journeys, even before a patient is ready for transplant. Sankalp’s first Remote OPD at Jamnagar is changing that first step.
Ten families were evaluated and supported with laboratory investigations and medicines, helping the team understand what each patient needs next.
